Advocacy
The National Spasmodic Dysphonia Association is a proud partner of the Dystonia Advocacy Netowork (DAN) which is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community. The DAN continuously works to adopt and advance a legislative agenda which raises awareness of dystonia, educates policymakers about dystonia, addresses patient care issues, and moves research forward. The DAN welcomes and represents individuals with all forms of dystonia, and is lead by the following dystonia organizations:
Benign Essesntial Blepharospasm Research Foundation (BEBRF)
DySTonia, Inc.
Dystonia Medical Research Foundation (DMRF)
National Spasmodic Dysphonia Association (NSDA)
National Spasmodc Torticllis Association (NSTA)
For more information about the work of the DAN and how to become more involved, please go to www.dystonia-advocacy.org.